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GMJ News > Policy & Systems > Health Policy > UK Establishes National Hepatitis C Register to Track Viral Infection Patterns
Health PolicyPolicy & Systems

UK Establishes National Hepatitis C Register to Track Viral Infection Patterns

GMJ
Last updated: 23/06/2026 18:42
By
GMJ Policy Desk
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Healthcare worker reviewing hepatitis C patient data on computer screenIllustrative image · Photo by National Institute of Allergy and Infectious Diseases on Unsplash (Unsplash License)
The UK has established a National Hepatitis C Register to track viral infection patterns and support WHO elimination goals. The registry will collect patient data to inform clinical practice and public health interventions. — Photo by National Institute of Allergy and Infectious Diseases on Unsplash (Unsplash License)
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3 min read|607 words
✓ Reviewed by Prof. Giorgi Pkhakadze, MD, MPH, PhD · ORCID 0000-0001-7609-4515

The United Kingdom has established a National Hepatitis C Register to systematically collect patient data and inform understanding of hepatitis C virus (HCV) infection patterns across the country. The initiative, announced by UK Health Security Agency, represents a comprehensive approach to tracking viral hepatitis epidemiology in clinical practice.

Contents
    • Key takeaways
      • Global Hepatitis C Burden by WHO Region
  • Registry Framework Supports Elimination Goals
  • Data Collection and Patient Surveillance
  • Clinical Practice and Public Health Impact
    • What this means
  • Frequently asked questions
    • What data does the Hepatitis C Register collect?
    • How does this support hepatitis C elimination?
    • What are the current hepatitis C treatment success rates?

Key takeaways

  • UK launches national registry to systematically track hepatitis C virus infection patterns
  • Register will collect patient data to inform natural history understanding of HCV
  • Initiative supports WHO elimination targets through enhanced surveillance
162,500
people estimated to have chronic hepatitis C in the UK (Public Health England, 2019)

Global Hepatitis C Burden by WHO Region

Estimated chronic infections, millions of people, 2019

Western Pacific
23.0m
Eastern Mediterranean
14.8m
South-East Asia
11.0m
Europe
10.0m
Africa
8.9m

Source: World Health Organization, 2022 | Georgian Medical Journal News

Registry Framework Supports Elimination Goals

The National Hepatitis C Register aligns with the World Health Organization’s global strategy to eliminate viral hepatitis as a public health threat by 2030. The WHO targets include reducing new chronic infections by 90% and deaths by 65% compared to 2015 baseline levels.

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UK health authorities have made significant progress toward these targets following the introduction of direct-acting antiviral (DAA) therapies. The clinical updates in hepatitis C treatment have transformed the disease from a chronic condition to a curable infection in most cases.

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Data Collection and Patient Surveillance

The register will systematically collect clinical and demographic data from patients diagnosed with hepatitis C across England. This comprehensive surveillance approach enables researchers and clinicians to better understand disease progression patterns, treatment outcomes, and population-level trends.

According to published research on hepatitis C natural history, longitudinal patient registries provide crucial insights into infection chronicity rates and liver disease progression. The UK registry follows similar models implemented in other European countries as part of broader elimination strategies.

Direct-acting antiviral treatments achieve sustained virologic response rates exceeding 95% across all hepatitis C genotypes

— European Association for the Study of the Liver Clinical Practice Guidelines (Journal of Hepatology, 2020)

Clinical Practice and Public Health Impact

The registry data will inform clinical guidelines and public health interventions targeting high-risk populations. Previous studies published in medical literature demonstrate that systematic screening and treatment programs significantly reduce community viral transmission.

Healthcare providers can access patient care resources and updated treatment protocols through the registry framework. The initiative supports the broader goal of achieving micro-elimination in specific populations and geographic areas before reaching national elimination targets.

What this means

For patients: Enhanced tracking of treatment outcomes and long-term care coordination for hepatitis C management
For clinicians: Access to population-level data supporting evidence-based treatment decisions and screening protocols
For policymakers: Comprehensive surveillance data to guide resource allocation and elimination strategy implementation

Frequently asked questions

What data does the Hepatitis C Register collect?

The register collects clinical and demographic information from patients diagnosed with hepatitis C to track infection patterns and treatment outcomes. Specific data elements include diagnostic results, treatment history, and demographic characteristics.

How does this support hepatitis C elimination?

Registry data enables health authorities to identify gaps in care, monitor treatment uptake, and track progress toward WHO elimination targets. This systematic approach helps optimize screening and treatment programs.

What are the current hepatitis C treatment success rates?

Modern direct-acting antiviral therapies achieve cure rates exceeding 95% for most patients with chronic hepatitis C infection. Treatment duration typically ranges from 8 to 12 weeks depending on viral genotype and patient factors.

The National Hepatitis C Register represents a significant step toward achieving viral hepatitis elimination in the United Kingdom. As health systems worldwide implement similar surveillance frameworks, the data generated will contribute to global understanding of hepatitis C epidemiology and support evidence-based elimination strategies across diverse populations.

Source: Guidance: Hepatitis C National Register

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Disclaimer. This article is health journalism intended for general information and education. It is not medical advice and is not a substitute for professional diagnosis or treatment. Always consult a qualified healthcare provider about your individual circumstances. Full disclaimer →

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Related reference
  • Hepatitis C · Condition
PG
Written by
Prof. Giorgi Pkhakadze, MD, MPH, PhD
Editor-in-Chief, GMJ News
Full profile →  ·  ORCID 0000-0001-7609-4515
Medical disclaimer. This article is health journalism intended for general information. It is not medical advice and is not a substitute for consultation with a qualified healthcare professional. Always seek your physician's advice regarding any medical condition.
Medically reviewed by Prof. Giorgi Pkhakadze, MD, MPH, PhD. Spotted an error? Contact the editorial team.
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TAGGED:disease surveillancehepatitis Cpublic healthUK health policyviral hepatitis
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